Helpful Resources

The resources below are available to help support you by providing information about respiratory management in DMD.

DMD Pulmonary Awareness Videos

Measuring Respiratory Health in Duchenne Muscular Dystrophy

Learn how a spirometer test is used to help manage respiratory health and how it is performed.

Pulmonary Video Series From Parent Project Muscular Dystrophy

This video series was created with the help of an expert team of pulmonologists and parents, and with the support of Santhera Pharmaceuticals.

What to expect at your pulmonary visit

Information on what will happen at the pulmonologist.
 

Cough

The importance of coughing in DMD.

Assisted Cough

Ways to assist your cough and keep your airways clear.
 

Nighttime Breathing

Nighttime breathing problems and how sleep studies can help.

CPAP/BiPAP

How CPAP and BiPAP devices assist nighttime breathing.

A Comprehensive Brochure

Guide to Respiratory Health

Get detailed information on managing the respiratory challenges of DMD.

DOWNLOAD

DMD Advocacy Groups

The following organizations provide support, resources, and ways to connect with others in the DMD community for information.

Muscular Dystrophy Association
www.mda.org
Jett Foundation
www.jettfoundation.org
Parent Project Muscular Dystrophy
parentprojectmd.org

DMD Clinical Trial Updates

In the DMD community there's a lot of hope and anticipation about a number of new therapies on the horizon. Many pharmaceutical companies are running clinical trials with the goal of bringing potential new treatments to DMD.

Talk to your doctor about the DMD clinical studies that might impact you the most. Find the latest news and updates on DMD clinical studies by visiting clinicaltrials.gov and www.duchenneregistry.org.